Comments on: New Information About Angioedema

By: Life Without A Fork

Life Without A Fork — Sat, 19 Dec 2015 23:05:00 +0000

In reply to Katzenmoped. Well said, Bettina. Thank you--my comment didn't post. ;)

By: Nita Daniel

Nita Daniel — Sat, 19 Dec 2015 02:19:00 +0000

There are many forms of angioedema. Most, like hereditary angioedema and chronic reoccurring idiopathic angioedema, wish it were as harmless and merely embarrassing as your article states. It is life altering and very often life threatening. There is no cure and finding a reliable treatment is difficult. While I doubt it was meant to, your article downplays a very serious disease. As someone who suffers from it and has had to go to the er because their airway was compromised I feel you have done those of us who suffer from it a disservice.

By: Lucy Wonders Hahn

Lucy Wonders Hahn — Sat, 19 Dec 2015 01:31:00 +0000

As someone with a history of this disorder, I find that this minimization if Angioedema, its duration, causes, and severity could be confusing and dangerous. This is a life altering and very serious condition. It lasts years. It does ruin days and interferes with lives. Please research this condition further and print a retraction. Doctors don’t know how to stop or treat this condition well. They sure don’t know how to prevent it.

By: Shoesnbags

Shoesnbags — Fri, 18 Dec 2015 21:34:00 +0000

I have been raised not to be rude or disrespectful, so I will try to be polite.
Your article is full of inaccuracies. Not every form of angiodema is from the histamine pathway and allergens won’t be a factor. Also, antihistamines, standard steroids and adrenaline will not be the only treatment available.
Look up HAE (heredity angiodema, incase you haven’t heard of it) and the rarer, bradykinin mediated angiodema. You will find loads of information on angiodema that doesn’t follow antihistamines treatment and needs extremely different medication. They are also life threatening.

I help run a support group, we are a large international groups. I have members with every form of angiodema. Histame mediated, bradykinin mediated, hae type 1, hae type 2, hae type 3, allergy driven, autoimmune .
Some of them have had intubation and we have had members pass away. God love them.
Your article is not only full of inaccuracies but is deeply unhelpful and disrespectful to those battling with all forms of angiodema.
I can also pull apart your article on the inaccuracies of hives but you are boring me now.
But I do have one question. When you worked in a hospital, was you a porter or a cleaner??

By: Katzenmoped

Katzenmoped — Fri, 18 Dec 2015 20:54:00 +0000

Hi Jeanne Rose,
I just stumbled about your article and found it to be very misleading. I am an angioedema patient since 11 years and angioedema neither is an allergic reaction nor it is harmless and the condition angioedema itself usually does NOT go away on its own within days or weeks at all.
While a single episode CAN occur within an allergic reaction, angioedema itself is a very severe chronic auto immune disease that comes with constant danger of anaphylaxis and therefor it is life-threatening and in the most cases requires lifelong treatment.
I am an advocate for angioedema awareness since 2005. I also would like to suggest to do more research on HAE (Hereditary Angioedema) to include some more info about the different types and stages of angioedema in your article.
Best regards from germany, Bettina